A blog describing the special bond I share with my special-needs daughter who was born weighing 12 oz!!
Tuesday, April 8, 2008
Granny..
One of the dearest friends I have met because of Alex, is someone I call “Granny”. This particular “Granny” is not my grandmother but just a dear friend. She came into our lives one day, nine years ago and succeeded in holding a special place in our hearts.
The bonds and memories we have created these past years truly amaze me. I don’t see how we can share similar interests and laugh at similar incidences when my “granny” friend is more than forty years older than me.
Aside from the fact that we shared similar knowledge about premature infants, “Granny” has truly showen us true love, frienship and sacrifice beyond words. She is always there to lend whatever help she can whether it being physical or supportive. I can never forget her immense help and contribution to the fund-raising garage sale I conducted for my daughter a few years ago. In spite of the fact that she was in her eighties and suffered a bad back, she was there every step of the way. She not only carried and priced sale items, but also encouraged her circle of friends to donate to a worthy cause and thus contributed to the success of this garage sale event. When asked "why?", she would reply "I want this child to have the medical care she needs." -this child - being my special-needs daughter, Alexandra.
This act of kindness is hard to find nowadays.
It is true that we meet so many people along our life’s path. I am just blessed that my path led me to “Granny”..
©Copyright 2008.Najwa S. Hirn. All rights reserved.
Monday, March 17, 2008
A Special Dedication..
Family has many meanings, but one rises above
http://www.poemhunter.com/poem/to-me-what-family-is/
It is unbelievable that I have reached my one hundredth posting on this blog. It seems like only yesterday when my sister told me that I should start a blog and my reply was “What the h… is a blog?” I had no clue! I never realized I would enjoy writing to this extent. I guess I should have believed my dad when he predicted writing for my future (see posting 11-12-2007)
I honestly can’t say how this love affair with blogging started. I do know that the first tries were pure disasters as I practiced aimlessly with different platforms. The tries weren’t consistent; therefore the final product lacked so many things. It took about two months until I settled on something that I could produce proudly. My eyes shone at my first published words. It was like Christmas all over again!
I have been thinking for a few days about what I should write for my 100th posting. It had to be a very special article since it symbolizes a milestone in my journey towards future perfection. It dawned on me that this post would have to represent a special dedication to God and my family. Without the combination of the two, nothing in my life would have been possible today.
Above all, God is the ultimate healer. Throughout these years, he has definitely kept us in the palms of his hands and embraced us with such love that filled us with the strength we needed to go on.
I am blessed to be surrounded by my husband and child. As I recall the years gone by, I cannot help but hear friends asking my husband and I:”How are you able to keep going while taking care of a special child?” The answer comes naturally to us: “Alex is our normal. We haven’t known anything different. We are blessed with strong bonds that strengthen as the years go by.” It is those bonds that allow us to keep doing what we are doing.
Then comes our extended family. It is no doubt that their love and support all these years has succeeded in reducing the worries, concerns and sleepless nights that we have had to endure. It has been a true blessing to be able to call upon them at any time and they have never failed us in anyway.
Thus comes this special dedication. To all the people in my life, I am truly grateful for their love and help, and to God, I am truly humbled that He has chosen me to take care of His special little girl.
©Copyright 2008.Najwa S. Hirn. All rights reserved.
Friday, February 29, 2008
Uncertainties..
However, as a human being and as a mom of a special child, I cannot help but be faced by uncertainties at various times. Usually, this occurs when I am about to make a decision regarding Alexandra's health care. I have always been a planner. I've always prepared lists and laid out the perfect path for everything that should take place in my life. I liked to know that I had made the right decisions in those aspects.
I experienced those uncertainties this past week as I tried to decide on a course of action regarding my daughter's health. It is a blessing that, during such times, I know that I can turn to my sister for help and support. I am very blessed by her presence and her way of putting things back into perspective for me. I needed reassurance and she was just the one to give it. She emailed me just the right article that I needed to help ease up my mind and allow me to feel better about the decisions I were about to make. I quote from this article this paragraph that I held dear:
"Knowing God's will can never remove the uncertainty--nor should it. The uncertainty is good for us because it keeps us trusting and praying, it keeps us from being overly self-confident.
When your heart is right and you are faced with two good choices, take either one you like. And trust God with the result. If the heart is willing, the decisions of life will take care of themselves because God will direct your steps exactly where he wants you to be."
As I read and reread the article I was filled with such calmness and serenity. A clamness that assured me that, in spite of all the uncertainties, God will lead me to make the right decision.
After all, it is ultimately God who will put together the pieces of my life just like they are meant to go...
For additional information about the above article, please visit: When You Have Two Good Choices.
©Copyright 2008.Najwa S. Hirn. All rights reserved.
Monday, February 18, 2008
God's Plan..
I’ve learned throughout these years that God has a different plan laid out for me. I may have lost a professional career but I have gained a stronger spiritual and emotional career that I will not trade. I have had the opportunity to meet and befriend special people that I would never have met if it weren’t for Alex. I have made bonds and friendships that will last a lifetime.
Above all, I have been entrusted with a beautiful and loving little girl that is a part of my heart. A daughter that is more than a special gift. A child that is here today because of God’s plan. Special needs or not, In God’s eyes and mine she is a perfect child.
Whatever His plan may be, I am certain that it will be a great one and I am lucky to be here waiting to receive its abundance!!
©Copyright 2008.Najwa S. Hirn. All rights reserved.
Thursday, February 14, 2008
Valentine Wishes..
Friday, February 8, 2008
I Believe In Miracles..
It is by no means that I intend to ever forget my daughter’s premature birth or her long NICU hospital stay. At 26 weeks gestation, she arrived weighing barely 12 ounces and measuring only 8 inches in length. Her chances of survival were very slim. With all that still fresh in the back of my mind, I can’t help but be moved when I discuss the events that went on during those long first eight months of her life ten years ago. I can’t even explain or express the feelings that engulf me when I remember those lonely days and nights gone by. Those first few months are forever engrained in our lives. They shaped my daughter to become who she is today and for me to grow into the mom that I am today. Many a times, I had wished that things would have been different for her starting out. However, that was out of my control. The endless wait was unforgiving, and the longing for a homecoming was unbearable. I never would have wished such a traumatic birth and after-birth unto any mother or child. In spite of it all, we made the most out of the cards that we were dealt.
About three weeks after my daughter, Alex, was born, my sister approached me saying:”we must take pictures”. I questioned her request with a bewildered and puzzled look asking: “pictures of whom?” Her reply was simple:” Alex, of course!”. At that moment in time, pictures of the new baby were the furthest thing from my mind. As I looked into the four enclosed glass compartment that housed my tiny child, I wondered if my Alex would even appear in those pictures. It was a new concept that I had to digest.
I will forever be indebted to my sister for taking those pictures. As difficult and as hard as it was at the time, it had to be done. They remain as a symbol of the miracle that is my daughter and I hold them dear to my heart.
It is those same pictures that brought about the Déjà vu that I experienced this evening. I was sharing them with a friend in dance class. As a physician, she understood very well the complexity of the situation. She was at awe at those pictures and could not believe the story that I was telling her. I could barely believe it myself! It seems that it had happened to someone else and not us.
As she turned to me asking how we could’ve survived such a difficult past and reached to were we are today, I had no other explanation but to tell her that: ”I always believed in Miracles..”
©Copyright 2008.Najwa S. Hirn. All rights reserved.
Monday, February 4, 2008
A Special Request..
Here are the prayers:
The sun so bright up in the sky.
--Margaret Kennedy
Good Night, God
I love you, God,
©Copyright 2008.Najwa S. Hirn. All rights reserved.
